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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter D.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
X OUT ALS
Sex: M
Data Quality: 2 stars
ALS: 23 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Ed Davis Male, 54 years Medford, OR First Symptom: 01/91
Dx: 02/96
ltbeauti
Sex: F
Data Quality: 3 stars
ALS: 9 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Lisa Davis Female, 51 years Richmond, VA First Symptom: 11/04
Dx: 04/08
Tank55
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Ted Davis Male, 59 years UT, United States First Symptom: 01/03
Dx: 08/03
walleyball
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
tim dawson member since
Daytripper371
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Charles Day Male, 49 years Gilbert, AZ First Symptom: 10/04
Dx: 07/05
hansdebree
Sex: M
Data Quality: 0 stars
ALS: 22 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Hans de Bree Male, 69 years EEMNES, Utrecht First Symptom: 01/92
Dx: 01/94
washeba
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Dianne DeCarlo Female, 69 years Springhill, FL First Symptom: 11/06
Dx: 04/07
tomvicded
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Thomas Dedman Male, 60 years AR, United States First Symptom: 08/08
Dx: 01/09
Muddling
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Carol Degenstein Female, 72 years Globe, AZ First Symptom: 04/04
Dx: 04/07
Cricketjbs
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Jane Delaney Female, 67 years Frostburg, MD First Symptom: 11/09
Dx: 07/10
KENN
Sex:
Data Quality: 0 stars
ALS: 15 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ken Del Carlo 67 years Santa Rosa, Ca., CA First Symptom: 08/99
Dx: 03/03
mdlfv
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Maximo De Leon member since
grett
Sex: M
Data Quality: 2 stars
PLS: 10 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
grett deleonard Male, 63 years ronkonkoma, NY First Symptom: 01/04
Dx: 06/05
osvaldirde
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
OSVALDIR DE LIMA DOS PASSOS Male, 50 years RIBEIRÃO PIRES, SÃO PAULO First Symptom: 10/01
Dx: 12/02
Nicchi
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
niccolo de luigi Male, 64 years ROMA, Italy First Symptom: 10/00
Dx: 01/01
wdennis
Sex:
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
William Dennis 70 years Rochester, NY First Symptom: 04/05
Dx: 04/06
lucrecia
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Leslie de Palomares Female, 70 years Caracas, Estado Miranda First Symptom: 02/07
Dx: 05/07
cure4u
Sex: F
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: mild
Legs: none
ellie deren Female, 53 years MD, United States First Symptom: 02/08
Dx: 02/10
midwest
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Vas des Male, 71 years Chicago, IL First Symptom: 04/05
Dx: 05/06
Bear620
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Barry DEspain Male, 57 years Ogden, UT First Symptom: 10/06
Dx: 07/07