ALS Public Registry

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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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There are 150 PALS in the registry starting with the letter B.

Patient Status	Patient Name	Profile	Location	Diagnosis Info
darmay100 Sex: M Data Quality: 0 stars ALS: 7 yrs Bi-Pap Wheelchair Bulbar: severe Arms: severe Chest: moderate Legs: severe	william burns	Male, 56 years	moon township, PA	First Symptom: 08/05 Dx: 12/06
claudiamedic Sex: F Data Quality: 2 stars ALS: 8 yrs Bi-Pap Wheelchair Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Claudia Burrows	Female, 51 years	IN, United States	First Symptom: 10/04 Dx: 08/06
Vacaville Alan Sex: M Data Quality: 0 stars ALS: 4 yrs Wheelchair Bulbar: mild Arms: mild Chest: mild Legs: moderate	Alan Burton	Male, 73 years	Vacaville, CA	First Symptom: 08/03 Dx: 08/06
KathyB Sex: F Data Quality: 0 stars ALS: 9 yrs Bi-Pap Feeding tube Bulbar: severe Arms: none Chest: moderate Legs: mild	Kathy Bush	Female, 59 years	Galt, CA	First Symptom: 08/03 Dx: 07/04
kkbuslach Sex: M Data Quality: 0 stars ALS: 11 yrs Ventilator Wheelchair Bulbar: none Arms: severe Chest: moderate Legs: severe	Kyle Buslach	Male, 61 years	Edmonds, WA	First Symptom: 04/02 Dx: 11/02
cab Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Cathrin Butz			member since Mar 2007
Kenny Data Quality: 0 stars ALS: 9 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Ken Buzzard	73 years	Huntington, IN	First Symptom: 07/03 Dx: 09/03
benbyer Sex: M Data Quality: 0 stars ALS: 6 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Ben Byer	Male, 37 years	Chicago, IL	First Symptom: 10/01 Dx: 09/02
Sailersam Sex: M Data Quality: 3 stars ALS: 9 yrs Wheelchair Bulbar: mild Arms: mild Chest: mild Legs: moderate	Bill Byford	Male, 66 years	Taihape, Rangitikei, New Zealand	First Symptom: 02/04 Dx: 03/06
Tuscon Nancy Sex: F Data Quality: 1 star ALS: 11 yrs Bulbar: mild Arms: mild Chest: none Legs: moderate	Nancy Byler	Female, 71 years	Tucson, AZ	First Symptom: 04/02 Dx: 04/04

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