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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 150 PALS in the registry starting with the letter B.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
wmbsr1
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
William M. Blough, Sr. Male, 66 years Denham Springs, LA First Symptom: 04/03
Dx: 02/04
Bootie
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Brian Board First Symptom: 03/09
Dx: 06/09
kahuna
Sex: M
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Albert Bocanegra Male, 66 years North Plains, OR First Symptom: 08/06
Dx: 01/07
rcharlton
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: none
Richard Bogart Male, 45 years Toronto, Canada First Symptom: 01/05
Dx: 07/05
jbolser
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Jerry Bolser member since Oct 2006
dbondcst
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Janet Sue Bond member since Jun 2008
Coda101
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: none
Legs: moderate
ian bond Male, 48 years central coast, NSW First Symptom: 01/06
Dx: 02/08
jasonsmith
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
terry bonewell Male, 50 years blackwell, OK First Symptom: 06/06
Dx: 08/06
gregm
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Greg Bonfa member since Oct 2007
johnb
Sex: M
Data Quality: 0 stars
ALS: 20 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
John Bonnet Male, 62 years Kent, United Kingdom First Symptom: 07/92
Dx: 09/93
Spodfather
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Chris Boon Male, 38 years St Helens, Merseyside First Symptom: 11/09
Dx: 07/10
tom
Sex: M
Data Quality: 2 stars
ALS: 17 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Tom Borchert Male, 73 years IA, United States First Symptom: 01/96
Dx: 05/98
1384pb
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
peter borgström member since Aug 2008
reidamylips
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: moderate
Chest: severe
Legs: severe
reida borst Female, 61 years ventura, CA First Symptom: 07/04
Dx: 08/06
boswell
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
suzanne boswell Female, 59 years saltspring island, Canada First Symptom: 04/00
Dx: 03/02
instech
Sex: M
Data Quality: 0 stars
ALS: 16 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Mike Bougher Male, 48 years Benicia, CA First Symptom: 06/96
Dx: 07/98
ro44bo55
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Ronnie Bower Male, 51 years Lonsdale, MN First Symptom: 08/05
Dx: 02/06
Web
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Wayne Bowers Male, 59 years SD, United States First Symptom: 12/08
Dx: 07/09
liltne2
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Robert Bowers Male, 64 years Croswell, MI First Symptom: 11/11
Dx: 03/12
greekmom
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Karen Bowser Female, 50 years Dearborn, MI First Symptom: 06/06
Dx: 05/07

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