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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter B.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Betty B
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Betty Bergen Female, 82 years Boynton Beach, FL First Symptom: 03/03
Dx: 05/06
FMB
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
FRED BERGER Male, 55 years Morganville, NJ First Symptom: 06/07
Dx: 10/07
Rick Berger
Sex: M
Data Quality: 2 stars
ALS: 24 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Rick Berger Male, 53 years Melbourne, FL First Symptom: 03/90
Dx: 12/11
Murry
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Herman berlin Male, 77 years bronx, NY First Symptom: 11/06
Dx: 03/08
silverage
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Robert Beshara Male, 55 years Rapid City, SD First Symptom: 03/07
Dx: 09/07
hankb
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Harry Best Male, 44 years Plainfield, IL First Symptom: 05/06
Dx: 10/06
EVMOM
Sex: F
Data Quality: 1 star
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Charlotte Betancourt Female, 39 years Hemet, CA First Symptom: 02/02
Dx: 09/02
Hoppy
Sex: F
Data Quality: 0 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Jill Bewg Female, 60 years United Kingdom First Symptom: 08/06
Dx: 01/08
stevieboy369
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Steve Biehle Male, 60 years St. Louis, MO First Symptom: 10/09
Cycling
Sex: M
Data Quality: 1 star
PLS: 1 yr
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Ian Billingham Male, 68 years P.O.Box 918, White River, Mpumulanga. South Africa First Symptom: 08/07
Barb274
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap
Bulbar: moderate
Arms: none
Chest: mild
Legs: none
Barbara Bishop 73 years First Symptom: 01/10
Dx: 08/10
alsretired
Sex: M
Data Quality: 0 stars
ALS: 16 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: mild
Steven Bishop Male, 49 years Arvada, CO First Symptom: 07/98
Dx: 03/01
hwbissegg
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Heather Bissegger Female, 35 years Salt Lake City, UT First Symptom: 12/06
Dx: 06/07
Barry B
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Barry Bitsko Male, 47 years Gibsonia, PA First Symptom: 04/07
Dx: 01/08
DeElla
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Diann Black Female, 59 years Sagamore, MA First Symptom: 03/06
Dx: 04/08
liblaha
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Libor Blaha Male, 54 years Brno, Czech Republic First Symptom: 11/05
Dx: 06/06
Jeri Blair
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Jeri Blair Female, 72 years Beavercreek, OH First Symptom: 08/04
Dx: 02/07
Blanky0725
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Robert Blankenhorn Male, 81 years Pottsville, PA First Symptom: 01/02
Dx: 11/05
frankb
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Frank Blankenship Male, 78 years Sandy Springs, GA First Symptom: 02/10
Dx: 11/10
NealBlanton
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Neal Blanton member since