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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter A.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Scooter8661
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Glenn Andrews Male, 52 years pascoag, RI First Symptom: 01/07
Dx: 03/08
harvhead
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Harry Andronis Male, 58 years Sherman Oaks, CA First Symptom: 04/06
Dx: 05/08
Julester
Sex: F
Data Quality: 2 stars
ALS: 13 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Julianne Angel Female, 49 years Alta Loma, CA First Symptom: 08/01
Dx: 10/08
mtst
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Pham The Anh member since
Hans68
Sex: M
Data Quality: 1 star
ALS: ? yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
Hans Ankersmit Male, 69 years Arnhem, Gelderland Dx: 02/13
carbuffmom
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Debra Anschuetz Female, 56 years Spruce, MI First Symptom: 08/04
Dx: 12/05
Pam
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Pam Antonivich Female, 71 years Springfield, VT First Symptom: 02/04
Dx: 11/05
Steve A
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Steve G. Appeldorn Male, 64 years Pico Rivera, CA First Symptom: 09/09
Dx: 08/10
fanappel
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Fredrik Appelgren Male, 45 years Sodertalje, Sweden First Symptom: 09/03
Dx: 05/04
Geordie36
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
George Armstrong Male, 73 years Poughkeepsie, NY First Symptom: 01/05
Dx: 06/07
babs34
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
barbara armstrong member since
Nelson1
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Nelson Armstrong Male, 78 years Demotte, IN First Symptom: 08/97
Dx: 04/04
healed
Sex: F
Data Quality: 3 stars
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Victoria Armstrong Female, 67 years Peoria, AZ First Symptom: 06/00
Dx: 01/06
add
Sex: F
Data Quality: 0 stars
PMA: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Britt-Christine Arnesson Abrahamsson Female, 60 years Sweden First Symptom: 01/06
Dx: 10/06
Jodikinz
Sex: M
Data Quality: 2 stars
PLS: 37 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Shayne Arsenault Male, 51 years Penticton, BC First Symptom: 07/77
Dx: 07/86
sriaravindan
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Anbarasi Arulselvan member since
aclmin
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
adad asdad member since
salsa
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Tommy Asher Male, 64 years spokane, WA First Symptom: 08/03
Dx: 11/06
ashfieb
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Barry Ashfield Male, 68 years Hessle, United Kingdom First Symptom: 01/04
Poida
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Peter Ashfield Male, 63 years Melbourne, Australia First Symptom: 02/05
Dx: 08/05