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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter A.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
john_a
Sex: M
Data Quality: 1 star
ALS: 1 yr
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
John A Male, 70 years Patras, Greece First Symptom: 09/05
DTA
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
David Aagard Dx: 10/92
sbaasman
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: mild
Susan Aasman Female, 69 years Mitchell, ON First Symptom: 09/10
Dx: 04/11
pabad
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Paul Abad Male, 42 years Stanton, CA First Symptom: 01/06
Dx: 12/07
pabbey13053
Sex: F
Data Quality: 0 stars
ALS: 18 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Patricia Abbey Female, 73 years Dryden, NY First Symptom: 11/95
Dx: 09/00
Shawn
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Shawn Acevedo Female, 44 years ELGIN, IL First Symptom: 08/02
Dx: 07/03
RedRyder
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Robert Acree Male, 70 years Pensacola, FL First Symptom: 05/04
Dx: 01/06
Adams9508
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: none
Legs: mild
Sally Adams Female, 53 years Gaithersburg, MD First Symptom: 01/09
Dx: 01/10
LMA
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Lois Adams Female, 65 years Kansas City, KS First Symptom: 05/08
Dx: 04/09
billy9
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
thomas adamson Male, 57 years IL, United States First Symptom: 04/09
Dx: 12/09
danat
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
dan adkins member since
nja59
Sex: F
Data Quality: 1 star
ALS: 11 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
NANCY ADKINS Female, 55 years SIBLEY, IL First Symptom: 02/03
Dx: 04/04
Corinne
Sex: F
Data Quality: 3 stars
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Corinne Aikema Female, 56 years Westover, ON First Symptom: 11/04
Dx: 11/05
mairel
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
mark airel Male, 49 years liverpool, NY First Symptom: 08/03
Dx: 04/06
Painwitpretty40
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Rachelle Akers member since
willowcreak93
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
douglas akins Male, 74 years farmington, MI First Symptom: 04/05
Dx: 10/05
deb_la
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Debbie Albin Female, 46 years Ponchatoula, LA First Symptom: 11/04
Dx: 01/06
deuce
Sex: M
Data Quality: 2 stars
ALS: 10 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
paul albino Male, 43 years maricopa, AZ First Symptom: 04/04
Dx: 12/05
Nakitas Pal
Sex: M
Data Quality: 1 star
ALS: 13 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Alan Alderman Male, 53 years South Jordan, UT First Symptom: 01/01
Dx: 09/01
Tod
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Tod Aleamoni First Symptom: 02/08