PatientsLikeMe ™

PSP
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Select a community
PSP including CBD
Find out more about the PatientsLikeMe
PSP Community
cajuntexusa

cajuntexusa

Male, 57 years
Nashville, TN
cajuntexusa
Sex: M
Data Quality: 3 stars
ALS: 1 yr
Bi-Pap
Mouth/throat: none
Arms: moderate
Chest: mild
Legs: mild
See profile
05/08
: 12/25/08

Diagnosis Summary
Arms
02/07
03/08

 About Me
My name is Charlie and I have ALS. I was diagnosed on 3/22/08 at Vanderbilt Hospital in Nashville, TN. My wife Aleta is my careprovider. Working with the Marine Corp League has been a wonderful opportunity for me. To be honored by them in a few weeks has lifted my spirits. They are giving me a roast and I am looking forward to seeing old friends and family. If I had to live my life again, I would not do anything differently.
More About Me
Number of times this Profile has been viewed 175 Views ALS Public Registry ALS Public Registry  
Caregiver Aleta
FRS: 29 (latest: 12/25/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 53% (latest: 06/06/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 185 lb (latest: 12/25/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top