PatientsLikeMe ™

PSP
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Select a community
PSP including CBD
Find out more about the PatientsLikeMe
PSP Community
Russ Conley

Russ Conley

Male, 64 years
Signal Hill, CA
Russ Conley
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Wheelchair
Mouth/throat: none
Arms: mild
Chest: none
Legs: moderate
See profile
11/06
: 12/20/08

Diagnosis Summary
Legs
01/05
11/06

 About Me
I was DX in Nov. 06 with leg onset. I can no longer walk, and my right hand is starting to be effected, my FVC was 73 on last check, but feel it has gotten worse. I was on Lithium for 6mos., did not notice much difference and stopped. I am 64, married with one daughter and a grand daughter 14 and grandson 4. I have a Permobil 300 and drive it a lot to visit friends within a 5 mile radius. I have a van with a side ramp for longer trips. I have enjoyed meeting friends here and have learned a lot from this group. I had a hobby until recently of doing gourd art and wood art. http://www.geocities.com/magicrusty/homepage.html
Number of times this Profile has been viewed 824 Views ALS Public Registry ALS Public Registry  
FRS: 32 (latest: 12/20/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 73% (latest: 12/20/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 208 lb (latest: 12/20/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top