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Username,
Name
Title About Me Contact
AuthorBeckyAyers
First Symptom: 07/65
Dx: 05/07
AuthorBeckyAyers
Data Quality: 3 stars
  • Sex: F
  • Age: 52y
  • Diagnosis: TLE
  • Duration: 46 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Severe
  • Physical: Mild
Seizures:
  • 3 CP
  • 0 GTC
  • 7 SP
AuthorBeckyAyers AuthorBeckyAyers
AuthorBeckyAyers
I am a 52 year old author with a cavernous angioma of the right temporal lobe, slightly overlapping the parietal lobe. I was diagnosed in 2007, even though I went my whole life having what we thought were low blood sugar fits. I take 2,500mg Keppra every day and still have visual aura's, olfactor... Email
allandale
member since
allandale
Data Quality: 0 stars
  • Sex: Male
  • Age: 61y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
allandale allandale
allandale
I am the husband (58) of Corinne (53) we have 6 Children with 5 married and 7 grandkids with one on the way. I still work full time as a building contractor and also serve as primary care giver for my wife - flexiblity in my work schedule allows me to do this. Corinne's possitive attidude and b... Email
thecyclist
First Symptom: 03/88
Dx: 01/09
thecyclist
Data Quality: 3 stars
  • Sex: Male
  • Age: 48y
Condition: MASS Phenotype 2 additional condition(s)
Quality of Life:
  • Mental: None
  • Physical: None
I am: Very good
thecyclist thecyclist
thecyclist
Email
bheywood
Admin
bheywood bheywood
Ben Heywood
Co-Founder, President I am one of the founders of PatientsLikeMe. We started PatientsLikeMe to help patients learn from our family's experience after my brother Stephen was diagnosed with ALS. We hope you find the site useful - please let us know if you have any suggestions or improvements. Loo... Email
jamie
Admin
jamie jamie
James Heywood
Co-Founder, Chairman I am the Co-Founder with Ben and Jeff and Chairman of PatientsLikeMe. and the Founder and Former CEO of the ALS Therapy Development Institute.

Since Stephens
Email
Doctors For America
Joel Weddington MD
California State Director, Doctors For America
JoelWeddingtonMD JoelWeddingtonMD
Joel Weddington MD
California State Director, Doctors For America I'm a medical doctor in the San Francisco Bay Area, particpipating in healthcare reform activities. I joined Doctors For America out of the desire to contribute to an organization that provides the strong physician leadership needed to restore health to our nation. Email
Eva Sweden
member since
Eva Sweden
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
Eva Sweden Eva Sweden
Eva Sweden
Email
sitelle
First Symptom: 07/78
Dx: 07/78
sitelle
Data Quality: 3 stars
  • Sex: Female
  • Age: 68y
Condition: Osteopenia 5 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Bad
sitelle sitelle
sitelle

SInce my friend's death, I started caring a litte about my health. Discoverd significant problems, with bone frailty (I have hip prothesis) and curved rachis. With 6 crushed vertebrae, and diverse fractures.

I underwent thyroid ablation, soon after Tchernobyl. It was pre-cancerous.

...
Email
Queenie4444
member since
Queenie4444
Data Quality: 0 stars
  • Sex: Female
  • Age: 46y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
Queenie4444 Queenie4444
Queenie4444
My husband is 48 and was diagnosed with PD in September 2007. We have two children ages 5 and 8. Email
allanfrankel
Guest Doctor
Member since: 11/11
allanfrankel allanfrankel
Allan Frankel
Email
Farmami
member since
Farmami
Data Quality: 0 stars
  • Sex:
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
Farmami Farmami
Farmami
Email
david100
First Symptom: 11/06
Dx: 06/07
david100
Sex: M
Data Quality: 3 stars
MSA: 5 yrs
Type: Striatonigral degeneration (MSA-p)
Mood: Very bad
Cognition: Severe
Autonomic: Severe
Head: severe
Arms: moderate
Legs: moderate
Tremors: moderate
david100 david100
david100
On Facebook: Add me: Dave Dennis Email
Coffee
member since
Coffee
Data Quality: 0 stars
  • Sex: Female
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
Coffee Coffee
Coffee
I live in Spring, Texas with my husband. He was diagnosed with ALS on November 14, 2007 - the day after our 45th wedding anniversary. He had been having symptoms since January, 2005. His whole attitude about having ALS and life in general is amazing. We have one son, Scott, who lives nearby a... Email
Camden AHEC
member since
Camden AHEC
Data Quality: 0 stars
  • Sex: Male
  • Age: 46y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Very good
Camden AHEC Camden AHEC
Camden AHEC
“ Positive Effect Group” is a weekly support group for people living HIV+ in the Camden NJ or Philadelphia area, who have an positive outlook on life. Meeting the second and last Wednesday 5pm to 7pm for confidential meetings hosted in a safe, and comfortable environment you can make new friends... Email
bipolarmom5
First Symptom: 01/83
Dx: 12/90
bipolarmom5
Sex: F
Data Quality: 1 star
Bipolar I
Depression: 1
Mania: 0
Emotional: 2
Anxiety: 2
Compulsion: 0
External Stress: Severe
Rx Therapy
41 F
Function: Moderate
Distress: Low
bipolarmom5 bipolarmom5
bipolarmom5
I am a bipolar mom to 5 kids. I am going through some major changes in my life right now. My husband and I are in the middle of a divorce right now that, at times, is less than friendly. My 4 young children are having a very hard time with this. My soon to be ex does not handle himself as a paren... Email
jessina
member since
jessina
Data Quality: 0 stars
  • Sex: Male
  • Age: 42y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
jessina jessina
jessina
Email
Judyb37
member since
Judyb37
Data Quality: 0 stars
  • Sex: Female
  • Age: 56y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
Judyb37 Judyb37
Judyb37
It is almost 1 year since I lost Fred (FMB). It doesn't get any easier as time passes. It just makes me miss him so much more. We have a granddaughter now, she was born in Nov. 2010. He never met her but she has so many of his qualities. If there is a god, please find a cure and stop this terri... Email
bobv_in_Maryland
member since
bobv_in_Maryland
Data Quality: 0 stars
  • Sex: Male
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
bobv_in_Maryland bobv_in_Maryland
bobv_in_Maryland
Pres., Rockville Roadies Multiple Sclerosis Project Inc. Bob: Mid 40's; Caregiver; Working in the biotech industry for over 20 yrs. Also founder of RRMS Inc, an all-volunteer nonprofit that serves the MS community in over 20 states. Susie (wife), has MS since 1996. Susie: Mid 40's; Self employed since 2000. VP of nonprofit mentioned above. MS since... Email
jacksgranny
member since
jacksgranny
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: None
jacksgranny jacksgranny
jacksgranny
I am the mother of three children with special needs, two of my children have Epilepsy. Like every parent, I seek information that will empower me to make the best decisions on behalf of my kids, and help them to navigate through life. I try to help my kids to stay positive, so they can focus on ... Email
JensDivesion
First Symptom: 04/06
Dx: 05/08
JensDivesion
Data Quality: 0 stars
  • Sex: Female
  • Age: 39y
Condition: Diabetes Type 2 1 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Good
JensDivesion JensDivesion
JensDivesion
In 2005 my husband was diagnosed with Young Onset Parkinson's Disease and through my desire to be the best caregiver possible I forgot about me. I gained alot of weight, have a family history of diabetes which became my own issue through diagnosis May 2008. I have learned alot since then, lost we... Email

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