I was DX'D 5/3/03 with ON in left eye which completely blinded me even after completing 5 days IVSM and the oral pack. I stayed blinded completely in the left eye for four years. After the brain MRI on 6/11/03 I was DX'D with RRMS. My brain was covered in lesions, and a couple in my c-spine. 6 months later I got a 2nd bout of ON in my right eye this time. After completeing IVSM and the oral pack my vision returned to almost normal within a week or two. During the first 4 years I was having flares atleast every months. Suffering from: numbness,electric shocks, headaches, spasity,tremors/seizure activity, gait,brain fog,bladder dysfuntion,swallowing issues,cognitive disfunction,depression, and wide spread pain. I went thru Copaxone, Betaserone and then was put on Novantrone. It finally slowed things down. I went into what I consider is a somewhat steady remission for a year and half. I did still have temporary flares which would come back, but they didnt last long and as soon as they came they soon left. I still kept spasity, muscle and joint pains, andheadaches as residual symptoms. But up until September of this year things were going well. But I at this point my Neurologist DX'D me now with SPMS. Needless to say I have taken my lifetime maxium of Novantrone so with that not being an option anymore, so we decided to give Rebif a try, because as of now my insurance won't cover, or I can't get enough assistance to go on the Tysabri my Neurologist wants me on. So starting next week I will have finally titrated up to the full dose. So I am not sure how well I am responding...I did have a nasty exhasterbation after two shot of it...but who knows if it was from the medication or that it was just going to happen anyways. This MonSter is a rollor coaster ride...and I guess I am just along for the ride. We will just have to wait and see where this journey leads me.
Jul 28, 2008
Sep 14, 2009
Profile charts require Flash.
If you have problems installing Flash,
visit the FAQ