PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
alsking101

alsking101

Male, 39 years
Newton, MA
alsking101
Data Quality: 3 stars
ALS: 9 yrs
Ventilator Wheelchair Feeding tube
Mouth/throat: severe
Arms: severe
Chest: severe
Legs: severe
See profile
11/05
: 06/02/08

Diagnosis Summary
Arms
11/97
12/98
11/26/06

Forum Activity
5 posts 3 helpful marks

About Me
Stephen Heywood passed away at Thanksgiving of 2006. His wonderful wife and amazing son still live in Newton, MA. Stephen is the inspiration for PatientsLikeME and his story is profiled in the documentary SO MUCH SO FAST. You can donate to the Stephen Heywood Fund. at ALS TDI
More About Me
Number of times this Profile has been viewed 1504 Views ALS Public Registry ALS Public Registry  
Administrator jamie
Administrator bheywood
Caregiver
Caregiver
FRS: 0 (latest: 10/01/06)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 5% (latest: 02/06/06)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 181 lb (latest: 10/06/06)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer slow my ALS progress
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Over The Counter Drug
TreatmentChart
Supplement
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top