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SammyJo

SammyJo

Female, 43 years
Edmonds, WA
SammyJo
Data Quality: 2 stars
MS: 13 yrs
Secondary Progressive
Sensation: mild
Overall: mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
See profile
05/07
: 10/19/07

Diagnosis Summary
Optic Neuritis
12/94
07/95

Forum Activity
8 posts 23 helpful marks

About Me
I did Copaxone for 4 or 5 years, it seemed to slow it down. Went from frequent violent attacks during the first 2 years to only 1 attack during copaxone, but towards the end of it I was sliding into SPMS w/o major attacks, just steady crumbling. That's when the neuro suggested Novantrone (didn't work at all, started using cane, damaged my heart). After that failed I did no treatment for 5 mo, then Avonex for 5 months (didn't work) then finally found LDN and have been recovering since. My story and successful effort to fund LDN research at UCSF http://LDNers.org
More About Me
Number of times this Profile has been viewed 437 Views  
MSRS: 10 (latest: 10/19/07)
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Weight: 125 lb (latest: 10/19/07)
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