- Russ Conley
- Sex: M
- Data Quality: 2 stars
- PLS: 5 yrs
- Bi-Pap Wheelchair
- Bulbar: moderate
- Arms: moderate
- Chest: moderate
- Legs: moderate
- Type: Upper Motor Neuron
- See profile
- Russ Conley
- Male, 66 years
- Signal Hill, CA
- Status
- 11/10/06
- 09/02/10
- 09/02/10
-
ALS Public Registry
- Condition History
- Legs
- 01/05
- 11/06
- My Care Team
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- Profile Activity
- 7360 Views
- About Me
- I was DX in Nov. 06 with leg onset. I can no longer walk, and both hands and arms effected now, my FVC was 47 on last check. I was on Lithium for 6mos., did not notice much difference and stopped. I am on hospice care now. I am 65, married with one daughter and a grand daughter 16 and grandson 5. I have a Permobil 300, Newport HT50 NIV, cough assist, nebulizer, hospital bed. God has blessed me with many friends that pray for me. I have told God I am ready to go when He wants to take me home, but that I will stay as long as He can use me. God is good despite the ALS. He loves you too.
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