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Patients > Russ Conley
Russ Conley
Status
11/10/06
09/02/10
09/02/10
ALS Ribbon ALS Public Registry
Russ Conley
Sex: M
Data Quality: 2 stars
PLS: 5 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Type: Upper Motor Neuron
Russ Conley
Male, 66 years
Signal Hill, CA
Condition History
Legs
01/05
11/06
My Care Team
missyann
Profile Activity
7360 Views
About Me
I was DX in Nov. 06 with leg onset. I can no longer walk, and both hands and arms effected now, my FVC was 47 on last check. I was on Lithium for 6mos., did not notice much difference and stopped. I am on hospice care now. I am 65, married with one daughter and a grand daughter 16 and grandson 5. I have a Permobil 300, Newport HT50 NIV, cough assist, nebulizer, hospital bed. God has blessed me with many friends that pray for me. I have told God I am ready to go when He wants to take me home, but that I will stay as long as He can use me. God is good despite the ALS. He loves you too.

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