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Patients > NicoleH
NicoleH
Status
05/08
05/11/09
05/11/09
ALS Ribbon ALS Public Registry
NicoleH
Sex: F
Data Quality: 2 stars
PLS: 15 yrs
Mouth/throat: mild
Arms: mild
Chest: none
Legs: moderate
Type: Upper Motor Neuron
NicoleH
Female, 39 years
Lincoln, NE
Condition History
Legs
04/94
03/08
Profile Activity
284 Views
About Me
I am a mother of 4,wife,sister,daughter best friend, and alll around the caregiver of the neighborhood. I love animals, angels, cherubs, dragonflies and butterflies. I have been battling symptoms for over 14 years. I have been misdiagnosed in the past with fibromyalgia, severe depression, MS, cerebral palsy, and of course the usual there is nothing wrong it is all in your head go home and tell yourself you are fine and you will be fine. And now finally someone is listening to me.....my diagnosis is Primary lateral sclerosis and I was told that this is what I have had for over 14 years. More…
FRS : 33 latest: 05/11/09
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FVC : 116% latest: 02/04/09
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Weight : 166 lb latest: 05/11/09
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