- SmoothS
- Sex: M
- Data Quality: 2 stars
- ALS: 4 yrs
- Wheelchair Feeding tube
- Mouth/throat: severe
- Arms: severe
- Chest: none
- Legs: moderate
- See profile
- SmoothS
- Male, 41 years
- Chelsea (Boston), MA
- Status
- 10/06
- 08/10/09
- 11/08/09
-
ALS Public Registry
- Condition History
- Arms
- 09/05
- 10/06
- Non-SOD1 ALS
- Profile Activity
- 3252 Views
- About Me
- My name is Steve, I am 41, and I was DX'd October 06. I think I am fairly atypical in that I moved on to accepting ALS immediately after DX. I would rather not have ALS, but I have never seen that worrying does any good and I choose not to waste my remaining mobile days lamenting what I no longer can do. On the contrary, I accept my new challenges and take a great deal of satisfaction in adapting to my losses. I am disturbed that so few pALS accept a vent and hope my efforts to create a residential pALS co-op will provide a living environment such that pALS choose life over death. More…
Primary Symptoms
- Severity of Symptoms
none- mild
- moderate
- severe
Secondary Symptoms
