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SmoothS

SmoothS

Male, 39 years
Marietta, GA
SmoothS
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Feeding tube
Mouth/throat: moderate
Arms: moderate
Chest: moderate
Legs: moderate
See profile
10/06
: 05/07/08

Diagnosis Summary
Arms
09/05
10/06

Forum Activity
1190 posts 1472 helpful marks

About Me
My name is Steve, I am 39, and I was DX'd October 06. I think I am fairly atypical in that I moved on to accepting ALS immediately after DX. I would rather not have ALS, but I have never seen that worrying does any good and I choose not to waste my remaining mobile days lamenting what I no longer can do. On the contrary, I accept my new challenges and take a great deal of satisfaction in adapting to my losses. I am disturbed that so few pALS accept a vent and hope my efforts to create a residential pALS co-op will provide a living environment such that pALS choose life over death.
More About Me
Number of times this Profile has been viewed 1647 Views ALS Public Registry ALS Public Registry  
FRS: 19 (latest: 05/02/08)
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FVC: 80% (latest: 03/07/08)
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Weight: 154 lb (latest: 04/07/08)
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