PatientsLikeMe ™

I had left sided weakness that all started, at least clearly, a year ago April (2009). My neurologist worked me up but in the end declared it was diabetic neuropathy. My glucose levels are under control (80-90's) w/ minimal oral meds. Finally, he was persuaded to refer me to UCLA for evaluation. They did a very professional and thorough assessment. I had to go back for an EMG/nerve conduction study but they at least told me they had some ideas as to what was wrong. After those tests, they gave me the ALS diagnosis. Not great but at least I'm not making this up or going crazy.