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gingermoments

gingermoments

Female, 33 years
Salford, Manchester, UK

gingermoments: Data Quality: 2 stars; ALS: 1 yr; Mouth/throat: none; Arms: severe; Chest: none; Legs: moderate; See profile

Member since: 01/08
Last updated: 08/14/08

Diagnosis Summary
Onset: Legs
First symptom: 04/07
Diagnosis: 11/07

Forum Activity
5 posts 12 helpful marks

About Me
Hi, my name is Jane and I am 33years old. I live with my husband Mark. I have 2 beautiful daughters, Niamh who is 7 and Lucy who is 1 year old. I also have a 14 year old stepdaughter called Kate (see them below in 'more about me'). I refuse to let ALS beat me, I will fight it all the way.My motto is 'Stay positive, be happy and love lots!'.

More About Me

64 Views

ALS Public Registry

My CareTeam

ALS Condition

FRS: 28 (latest: 08/14/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 97% (latest: 07/19/08)

Warning Levels: warning; severe

Weight: 198 lb (latest: 07/19/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: general health; specific symptom; other

Supplement

Equipment

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms