I am a 5 year liver transplant survivor. Before getting my liver, I was so sick and had so many obstacles in finding out the disease. I was diagnosed at the age of 25 with Primary Bilary Cirrohosis. Basically, you liver just shrivels up & you die. However, I was very lucky. With the assistance of my doctors, the love & support of my family, we were able to get me on the list. I got my transplant call on my sons 18th b-day, I was 39. When the surgeon saw my liver, they said it was a size of a prune, I was just days away from death.
Now, I work, I enjoy life, I live.
When I was 25 I started to have severe abdomen cramps, my Dr. first thought it might be endo, IBS items like that. However, there was nothing conclusive, my Dr. then thought maybe I was imagining stuff, however, determination & knowing I was in pain, being constant in coming back he started to do blood work on me. He realized that I had elevated liver enzymes. So obviously they thought it was gallbladder. I was admitted to the hospital to have that removed, however, before hand they needed to ultrasound it. Gallbladder was fine. The Dr. was stumped, he knew it was real. I was lucky, he contacted other Drs. and had them consult on my case. The symptoms were showing PBC, however, in order to diagnose it they had to biopsy. When I was 25, after 1 year of constantly going to the Dr. they realized I had PBC. This disease usually was diagnosed in middle age females, they were amazed. Early detection saved my life.
I guess if there is anyone who is having problems, the best suggestion I can give them is to establish themself with a Dr., keep going, keep the appts., make a journal at home on how you feel, the pain, if you take something for it etc. Ask questions and if possible have a family member or friend go with you to every appt. Sometimes two sets of ears are better than one, and sometime you might forget to ask something & your family/friend will remember.
Apr 21, 2010
Mar 10, 2011