I was diagnosed with Bulbar Onset ALS at age 39. I have been married to my wonderful wife, Kelly, for 17 years and also have 2 terrific children, a son age 15 and daughter age 12.
I am fortunate to have very supportive family and friends.
I worked for 18 years as a mechanical engineer and most recently as a project manager for a high-end residential builder.
I have always been very athletic and spent about 10 years racing bicycles to the semi-professional level and also have run marathons, endurance trail runs, etc. I've read that athletic people are more suspectible to ALS and I wonder if the many years of pushing my body to the limit of endurance have helped set ALS in motion.
Still using what I've got, while I can (could) - April 2010
Backpacking with my Buddy, Otis
My kids and I with Otis - Hiking
My wife and I
My famly vacationing in Puerto Rico December 2010
My kids and I December 2010
Dr. Horton, from the CDC, and I meet at Advocacy Days. I am honored to be participating in the ALS Registry Meeting in September 2011 as a PALS representative!!!
Me on Capitol Hill during ALS Association's Advocacy Day, May 2011
Meeting SmoothS at Dec.2010 International Symposium on ALS/MND
Meeting PatientsLikeMe's Emma Willey October 2011:
My wife and I advocating for ALS on Capitol Hill January 31, 2012:
Participating on expert panel for ALS Biorepository program for National ALS Registry, March, 2012:
Talking with Senator Kay Hagan May 2012 at Advocacy Day
Apr 07, 2010
Sep 17, 2012