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ltbeauti
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Status
Member since:
01/08
Last updated:
08/31/09
Last login:
11/12/09
ALS Public Registry
ltbeauti
Sex:
F
Data Quality: 3 stars
ALS:
5 yrs
Mouth/throat: mild
Arms: none
Chest: none
Legs: none
See profile
ltbeauti
Female, 46 years
Richmond, VA
Condition History
Onset:
Bulbar
First symptom:
11/04
Diagnosis:
04/08
Genetics:
Non-SOD1 ALS
Profile Activity
384
Views
About Me
Hi I'm Lisa. I love the beach and feel at home when I go there. My sister and I both have the same rare motor neuron disease that is a form of ALS. My father also probably had this same disease. Our progression is extremely slow (thank God).
More…
ALS Condition
FRS : 41
latest: 08/31/09
Progression rate percentile
90-95th (slow)
75-90th
25-75th (average)
10-25th
5-10th (rapid)
FVC : 96%
latest: 05/19/09
Warning Levels
warning
severe
Weight : 120 lb
latest: 08/31/09
BMI
obese
overweight
healthy
underweight
Treatments
Prescription Drug
Reasons Taken
treat my ALS
general health
specific symptom
other
Supplement
Other
Symptoms
Primary Symptoms
Severity of Symptoms
none
mild
moderate
severe
Secondary Symptoms
Please wait...
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