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ltbeauti

ltbeauti

Female, 45 years
Richmond, VA

ltbeauti: Sex: F; Data Quality: 1 star; ALS: 4 yrs; Mouth/throat: mild; Arms: none; Chest: none; Legs: none; See profile

Member since: 01/08
Last updated: 09/10/08

Diagnosis Summary
Onset: Bulbar
First symptom: 11/04
Diagnosis: 04/08

Forum Activity
1 post 3 helpful marks

About Me
Hi I'm Lisa. I love the beach and feel at home when I go there. My sister and I both have the same rare motor neuron disease that is a form of ALS. My father also probably had this same disease. Our progression is extremely slow (thank God).

More About Me

263 Views

ALS Public Registry

ALS Condition

FRS: 44 (latest: 04/23/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 86% (latest: 04/23/08)

Warning Levels: warning; severe

Weight: 126 lb (latest: 04/23/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: treat my ALS; general health; specific symptom; other

Supplement

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms