PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
Rosemary

Rosemary

Female, 45 years
Rochester, NY
Rosemary
Data Quality: 3 stars
ALS: 3 yrs
Mouth/throat: mild
Arms: none
Chest: mild
Legs: moderate
See profile
12/07
: 06/27/08

Diagnosis Summary
Arms
02/05
08/07

Forum Activity
965 posts 1489 helpful marks

About Me
Hello! My name is Rose and I have ALS. I am married to a wonderful husband Tom, and have two wonderful kids who happen to be teenagers (need I say more about that). My daughter is 15 and my son is 14. I enjoy music, love to play the piano (play by ear) which comes in handy when the fingers don't work LOL. I love chocolate and make it my goal to keep the Irish tradition of drinking alive. My mom died of ALS 11 years ago and watching her through those 4-5 years gives me the courage to keep on fighting. I am thankful for the PALS I have met.
Number of times this Profile has been viewed 1041 Views ALS Public Registry ALS Public Registry  
FRS: 32 (latest: 06/27/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 85% (latest: 06/26/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 173 lb (latest: 06/26/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Equipment
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top