PatientsLikeMe ™

Hi, I am a wife of an optometrist, the mother of a 14 year old son, a dog mom to a pound dog named AJ, and a published children's book author. I have been chasing a firm diagnosis for over eight years. It all began with muscle spasms and severe pain in my legs and hips. I've also had a intractable migraine that lasted for one year, pain all the time...24-7. In it's wake, was the swiss cheese appearance of my brain...but for some reason, that wasn't enough of a diagnosis. During this process of diagnosis, a syrinx was found in my spinal column. Syringiomyelia is a demylinating disease tha...