Hello! Welcome to my world. I usually HATE talking about NMO (I do not want pity), but I hope that this info will help someone. I always tell peolple there are ALOT worse things in life than NMO! NMO is just a change in perception, that's all. It is basically decided by one how bad one wants/ perceive a situation to be. I decided recently why should I "fight" this disease, I will embrace it instead- it has happened for a great reason! Life is NOT random...
Sure like most of you NMO people, I too was first labled with MS, but MS did not seem to fit. I only had extensive lesions in my spine and my brain was relatively perfect. Also, my symptoms were "too severe" to be MS. I was basically told that these symptoms were psychological! It was not possible to have MS causing respiratory failure/ arrests. Well it was later proven that it was not in my head...literally. NMO was the offical lable, after "having MS" for 3 yrs. With that, treatments changed and things got alot better, imagine the potential of addressing the correct disease...
Feb 28, 2010
Nov 04, 2011