I have lived in the Mountains nearly all my life (colder climate) Southwest Va and Western NC, I've been married for nearly 33 years and have 2 daugthers. I taught K-1 for 7 1/2 years and my husband and I have been running a very busy busniness for the past 26 years. I have always volunteered and fundraised at school/church & in the community. I love gardening & cooking and my husband I enjoy sailing,biking & hiking. Last fall when my first MS symptoms showed up I was biking an average of 14 miles every other day on the Blue Ridge Pky. In Sept 2009 I started feeling tired, not .......
sleeping well, having unusally bad headaches on one side of my head and I experienced Phantosmia( a smell disorder). I smelled cigarette smoke smell, but there was none in the air. It was a very heavy smoke smell that persisted on and off for several weeks along with the headaches. I was afraid I was going to have to smell this terrible smell the rest of my life. I read that some people are never able to get rid of these phantom smells. I had never heard of anything like this before, googled it and found it could be very serious. I saw my Dr. he made an appt. for me to have an MRI and EEG... white lesions were found.... An appt. was then made with a nerologists. My Dr. was able to relieve the headaches and the smell with a drug called topiramate. I have not smelled the smoke smell and rarely have a headache. However there are other sensory issues.
I am trying to adjust to the lack of energy. I have been riding my bike indoors in hopes that I will be able to ride this spring with my husband. I started my injections 3 weeks ago and so far so good. The mind fog is difficult to deal with, I keep searching for my words and they just don't come and it seems I spend half my day looking for things. I never had to make lists for the grocery store or things to do but now it seems I need a list for every thing. Sleep is my other huge issue at this time... I just can't sleep, I am searching for the magic answer on this one. I tend to become easily stressed and this is new for me. I am finding the busier I am the less time I have to think about me. My husband is wonderful and caring and I know I am very fortunate.
I try and remind myself: I can't control what happens in life... however I can control how I respond to it.
In the midst of what seems to be the most hopeless situation, God can do his greatest work! I pray for strength and courage to face each day and make a difference and contribution in some way.
Feb 27, 2010
Sep 19, 2010
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