I am a very creative person, having dipped my fingers in a number of creative fields, including singing, painting, photography, and sewing. I have lived with symptoms of fibromyalgia that have gotten increasingly worse throughout the years ever since I can remember. My sister photographed a post secret card for me, it said "Kiss my ass Fibromyalgia! I'm going to enjoy life anyway!" and I have sort of turned this into my motto.
When I was a child I had terrible restless leg syndrome, and I have always complained of back pain and cramping pains induced by even the smallest amount of running. When I was 9 I woke up with a dislocated hip. When I was 12 I began getting daily migraines and was diagnosed with TMJ. When I was 14 I had my first sleeping episode. I had always been an insomniac, even as an infant, so it was strange when all of a sudden I couldn't get ENOUGH sleep. I was dragging myself through school every day struggling to stay awake. I would come home and fall asleep immediately, waking up only to eat or use the bathroom. This lasted two weeks. I have recurring episodes of this symptom every year, though the time frame often varies.
I was diagnosed with dysmennorhea and I developed joint problems in my wrists when I was 14, starting as tendinitis and developing into carpaltunnel. I developed costochondritis and clinical depression and anxiety when I was 15. When I was 16 I was dxed with bursitis in my hips. When I was 17 I was dxed with IBS. From the ages of 18-20 I had no new occuring symptoms. at 19 I experienced my first "flare" in a full-body degree. I can remember being up late at night with my boyfriend and being overcome with full-body aches after a crying fit. It felt like my body was turning into a rock. He carried me into bed and I remember telling him it hurt to move, everything hurt, even breathing. He told me this was not the first time he'd seen this; that his friend had Fibromyalgia and would say almost the exact same thing "when she was feeling sick." At that point I started searching for answers.
I got health insurance when I was 20 and began seeing an osteopath. She gave me a confirming dx of fibromyalgia. I was also diagnosed later that same year with a twisted pelvis and two herniated discs, with dehydration in a third.
There's a lot of loopholes in my story- if Fibromyalgia is a non-inflammatory condition, why have I been dxed with so many inflammatory conditions?- that I am looking for answers to.
Feb 22, 2010
Sep 15, 2011