I am a 44 year old woman who was diagnosed in 2008 with MS and have slowly progressed over time. I am now waiting on an SSDI hearing and am disabled. Law school went out the window. I get severe attacks when barometric pressure drops and had the worst summer in 2011 I have ever had. It was very hot for many days in a row. Once fall came I felt better then I was hit with neuropathy in my right shoulder and have lost part of the use of it. I just live one day at a time, eat well, exercise when I can and relax a lot.
When I first got diagnosed it was hard to get on treatment until I saw a real good doctor. I then qualified for Copaxone and have been on it since 2008. I have been told I have sensory rather than motor RRMS, but this last attack was motor related. I am unsure if it means I am progressing or not. My advice is to get a will together immediately, along with a directive and appoint an attorney in fact from the family. Ultimately the burden lies on your next of kin to insure your care in case you are completely unable to do so; this is the state law. The other thing is this - don't deny you are disabled. It will hurt you in the long run. Start getting assistive devices and get accustomed to them. This disease hits you and you are in shock then if you do not have the proper device to assist you you could be stranded and lose your independence for days or weeks.
I just came out of denial about my MS. It was hard. I was "Miss independence". Now I feel this is not the case. However, when I decided to accept it, I realized I can still be independent, it is just different. I also believe I grew up in the age where handicapped people were generally poked fun at, called "handicreeps" and other names that have burned my expectation of how I will be treated. This is my next hurdle.
Feb 21, 2010
Nov 26, 2011
Profile charts require Flash.
If you have problems installing Flash,
visit the FAQ