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Patients > jhallowell
jhallowell
Status
02/06
11/14/09
11/11/09
ALS Ribbon ALS Public Registry
jhallowell
Sex: M
Data Quality: 3 stars
ALS: 7 yrs
Bi-Pap Wheelchair
Mouth/throat: mild
Arms: severe
Chest: mild
Legs: severe
jhallowell
Male, 46 years
wichita , KS
Condition History
Bulbar
08/02
08/03
Non-SOD1 ALS
Profile Activity
1583 Views
About Me
I am Jeff & I was 39 when DX with ALS at the Mayo Clinic in Rochester, Minnesota. I've been an athlete all my life i.e.; basketball at the Naval Academy (Freshmen & Sophomore years) I enjoy sailing, golf & running. Ethan, my only child had just turned 11 months old when I was DX. I am an aerospace engineer residing in Wichita, Kansas. USA. Every morning I awake and hear Ethan I thank God for giving me another day with my son. Ethan keeps me in this fight for life. ~Where we go ONE - we go ALL~ http://www.youtube.com/watch?v=dBODcN7cvqw http://www.myspace.com/jeffh44inks More…
FRS : 16 latest: 10/29/09
Progression rate percentile
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FVC : 30% latest: 11/02/09
Warning Levels
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Weight : 179 lb latest: 10/30/09
BMI
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Prescription Drug
Reasons Taken
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Supplement
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Physical Therapy
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Equipment
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Procedures
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Primary Symptoms
Severity of Symptoms
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Primary Symptoms