I am a 57 year old wife,mother and grandmother. My symptoms first started in 1980. First noticed having trouble speakingand walking with a gait. I went to Cleveland Clinic in 1984 where I was one of the first patients to have an MRI> I was given a tensilon test witch I passed. The Dr. put me on Mestinon and told me to come back in a year. They didn't have a diagnosis. He said that it could be a rare form of Dystrophy. Leaving his office he said that I was like a rare bird. Which didn't make me very happy. From that time until the next time I saw a neurologist I became very depressed....
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