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Patients > doepie
doepie
Status
09/09
10/22/09
11/21/09
ALS Ribbon ALS Public Registry
doepie
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Mouth/throat: severe
Arms: severe
Chest: none
Legs: moderate
doepie
Female, 44 years
Free State, South Africa
Condition History
Bulbar
06/07
07/08
Profile Activity
94 Views
About Me
I am a dedicated Christian mother of 2 children (boy - 19 yrs girl - 16 yrs) and married for 20 yrs. I am positive about life although ALS has broken my body down to a struggling mess. I have a wonderful supporting family and great friends. I attend gim 3 times a week. I have a feeding tube but can still have thick fluids by mouth. A friend of mine started a fundraising to buy me an electronic speech instrument.
FRS : 15 latest: 10/22/09
Progression rate percentile
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FVC : 95% latest: 09/06/09
Warning Levels
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Weight : 134 lb latest: 09/06/09
BMI
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Prescription Drug
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Supplement
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Physical Therapy
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Procedures
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Primary Symptoms
Severity of Symptoms
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