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Patients > Alex M
Alex M
Status
06/06
12/16/08
12/24/08
ALS Ribbon ALS Public Registry
Alex M
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap Wheelchair Feeding tube
Mouth/throat: severe
Arms: severe
Chest: moderate
Legs: severe
Alex M
Male, 49 years
San Diego , CA
Condition History
Arms
02/02
01/04
Profile Activity
181 Views
About Me
Hello, I'm married to Eileen and we have one son, Jason who's 26. I can only move my head, jaw and eyes, and use E Z Keys' Words Plus on a wireless laptop via a button switch placed next to my head. I feed through peg-tube and use a bipap 24/7. My parents now handle my care with the help of in-home hospice. I love the Lord and over all, my life has been truely blessed. I'm also at www.myspace.com/alex1pals
FRS : 5 latest: 07/24/07
Progression rate percentile
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FVC : 30% latest: 07/24/07
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Weight : 130 lb latest: 12/16/08
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Prescription Drug
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