I think I filled this out when I first joined, but lost it in the translation. I was diagnosed with Fibromyalgia in 2006, and felt at the time that I was glad it wasn't a progressive disease because I wasn't that bad off. But I fill now that it is more of a transitional disease in that it is forever changing. I do feel like I have gotten worse and whether that is from the addition of aging, I don't know. I am not disabled with this disease, but I can understand and empathize with those that are. It is a daily struggle against Fibromyalgia defining who I am.
I have always been SO grateful that I have not had as much bad symptons as I know I could have. I read about where everyone else is at with their FMS and want to give gentle hugs to many of them. But now I am in a darker rut that I can't seem to get out of. Everything seems worse, sleeping, pain/aches, fibro-fog, etc. And I can't seem to improve without more medication. And yet, I don't have to energy to try non medication things. How do you get your life back when everything seems to be crumbling around you?
Jun 29, 2009
Jun 26, 2013