I don't know how many patients like me have looked at my blog but I know some have because I get messages from fellow sufferers or carers. May I recommend looking at my blog which charts the progress of the disease in a fairly lighthearted manner. The whole point of this blog is to be inspirational; to show other sufferers how lead as normal a life as possible.
I have added some amusing anecdotes to leaven the bread The blog address is www.dmarkcato.com
I have had over 900,000 hits since mid-April, last year, so somebody hopefully is benefiting from it.