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Patients > singergram
singergram
Status
06/09
09/05/09
11/10/09
singergram
Sex: F
Data Quality: 1 star
ALS: 1 yr
Wheelchair
Mouth/throat: mild
Arms: moderate
Chest: mild
Legs: severe
singergram
Female, 78 years
FL, United States
Condition History
Legs
07/08
06/09
Non-SOD1 ALS
10/24/09
My Care Team
KintheKeys
Profile Activity
20 Views
About Me
Unfortunately, Singergram passed away on 10/24/09 after only 14 months from the very first signs of any problems and only 3 months after her diagnosis. I am a 78 year old widow who became affected by ALS last year and was originally diagnosed with CIDP (chronic inflammatory demylenating polyneuropathy). After 2 stays in hospital with treatments of IVIG and plasmaphoresis...neither of which did any good at all.... I was sent ot Shands Hospital at the University of Florida where Dr. Triggs diagnosed the ALS. The ALS symptoms seem to fit much better than the CIDP symptoms. More…
FRS : 18 latest: 09/05/09
Progression rate percentile
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Weight : 122 lb latest: 06/20/09
BMI
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Primary Symptoms
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