PatientsLikeMe ™

all Skip over navigation
Btn_join_now_lg

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
JW144000

JW144000

Male, 39 years
Mississauga, ON

JW144000
Data Quality: 2 stars
ALS: 3 yrs
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: moderate
08/07
: 02/20/08

Diagnosis Summary
Respiratory
05/05
03/06

Forum Activity
2 posts 2 helpful marks

About Me
IT WAS A DARK AND STORMY NIGHT WHEN I LEFT THE DENTISTS OFFICE. Just kidding! But it was shortly after that that my first symptoms started in my speech. That was May 2005. My life had finally came together: a new home, baby, my roofing company was doing well and I taught public speaking in the congregation I went to. After numerous run-arounds with specialists, imagine my surprise being diagnosed with ALS in February'06! I was a very healthy and active young man who never smoked or did drugs, and to be handed this death sentence was just not fair. we now live every day to the fullest! ........
Number of times this Profile has been viewed 71 Views ALS Public Registry ALS Public Registry  
FRS: 24 (latest: 02/20/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 80% (latest: 02/20/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 151 lb (latest: 02/20/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer slow my ALS progress
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Physical Therapy
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Lifestyle modification
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top