Skip over navigation
PatientsLikeMe ™
Share your experiences, learn from others, and
connect with patients just like you
.
Join Now (It’s free!)
Already a member?
Log in
(You Are Here)
Patients
Treatments
Symptoms
Research
Search this site
FAQ
Select a community
MS
Find out more about the PatientsLikeMe
MS Community
All Communities
Neurological Conditions
MS (Multiple Sclerosis)
Parkinson’s Disease
ALS (Amyotrophic Lateral Sclerosis) / MND (Motor Neuron Disease)
PLS (Primary Lateral Sclerosis)
PMA (Progressive Muscular Atrophy)
PSP (Progressive Supranuclear Palsy)
CBD (Corticobasal Degeneration)
MSA (Multiple System Atrophy)
Devic’s Neuromyelitis Optica
Epilepsy
Neuroendocrine Conditions
Fibromyalgia
CFS (Chronic Fatigue Syndrome) / ME (Myalgic Encephalomyelitis)
Mood Conditions
Anxiety
Bipolar
Depression
Obsessive-Compulsive Disorder
Post-Traumatic Stress Disorder
Immune Conditions
HIV/AIDS
Patients
>
Patsy
You appear to have JavaScript disabled in your browser. PatientsLikeMe relies on JavaScript and Cookies to deliver the best possible experience to you.
How do I enable JavaScript?
Status
Member since:
05/06
Last updated:
11/03/09
Last login:
11/06/09
ALS Public Registry
Patsy
Sex:
F
Data Quality: 1 star
ALS:
12 yrs
Bi-Pap
Wheelchair
Feeding tube
Mouth/throat: moderate
Arms: severe
Chest: moderate
Legs: severe
See profile
Patsy
Female, 46 years
Kapuskasing , ON
Condition History
Onset:
Arms
First symptom:
04/97
Diagnosis:
09/98
Profile Activity
434
Views
About Me
I am the mother of 2 boys, 16 & 13 years old. Separated. Still living at home with 24/7 nursing services. I am a retired RN.
ALS Condition
FRS : 8
latest: 11/03/09
Progression rate percentile
90-95th (slow)
75-90th
25-75th (average)
10-25th
5-10th (rapid)
FVC
Warning Levels
warning
severe
Weight : 170 lb
latest: 11/03/09
BMI
obese
overweight
healthy
underweight
Treatments
Prescription Drug
Reasons Taken
treat my ALS
general health
specific symptom
other
Over The Counter Drug
Supplement
Physical Therapy
Equipment
Procedures
Other
Symptoms
Primary Symptoms
Severity of Symptoms
none
mild
moderate
severe
Secondary Symptoms
Please wait...
x-small
small
medium
large
x-large
xx-large