PatientsLikeMe : worthy's MS Profile

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Status: Member since: 04/09; Last updated: 11/08/09; Last login: 11/17/09

worthy: Sex: F; Data Quality: 2 stars; MS: 24 yrs; Secondary Progressive; Sensation: Severe; Overall: Severe; Cognition: severe; Vision: severe; Speech: severe; Swallowing: severe; Upper limb: severe; Walking: severe; See profile

worthy: Female, 54 years; Franklin, KY

Condition History: Onset: Optic Neuritis; First symptom: 01/85; Diagnosis: 10/98

My Care Team

Profile Activity: 704 Views

About Me: About Me edit Hi, Had first signs in 1975 in college, but no one at time knew what was going on, not even me, I kept a journal and very odd things would happen..Like walking down hallway and going counter clockwise with body spinning in a different direction and literally slam into the lockers hard..I have forgotton a lot, for I believe God does not want me to remember. I talked to God, the wind, ..Family still does not fully understand, I don't either and I live it, suffered a lot after I had a Spinal Injury in January 17, 1983 for I will never forget that date and everything kind of went haywire from there. Kathleen (o^.^o) {{heartfelt}} About Me: As the days go by, each of us, slowly gives away little pieces of who we are... We give ourselves, to family, to people we don't know, but always inside... We keep a special little piece. Until one day, in one given moment, we know to whom it belongs... And in giving away this piece of ourselves. ~We are now complete~ married 1980 to my best friend and going strong..... ~live with a "Essential Tremor"~ on entire right side since 28, due to a "Spinal Injury". ~~~~~ Because of the Fibro and a now Secondary Progressive MS with Sensory and on Total Disability since 1996. But signs much much sooner. In my dreams I can do anything, that I am unable to do because of these diseases, so my legs become part fish, and it will be a children's book, but really a lot of inspiration, for my dreams feel so real and wonderful memories captured from living with my Aunt and Uncle un the summers for quite a few years and had and still have a wonderful imagination and glad for it.... ~~I am childlike and a free spirit and get along with any age, and a mermaid in dreams always has a youthful insight,and in the now I do not feel like I am a age and it is "Wonderful", also have a book to write on 90 pages of these dreams. [Being happy doesn't mean everything's perfect]. [It just means you decide to see beyond the imperfections]. ~~ "So", "how I feel this moment"? "God brings beauty to my heart" "he touched me and made me whole, yes he touched me". [Healing Heart]/ [Keep the Faith] ~~~A tree has both straight and crooked branches; the symmetry of the tree, however, is perfect. Life is balanced like a tree. When you consider the struggles, difficulties, and sorrows as a part of it, then you see it is beautiful and perfect. Good night Jesus, and thank you for the lovely day.~~~ Blessings to all on "patientslikeme".. May what I have expressed comforted you like a soft summer rain... May you always have a compassionate heart and a humble spirit. That alone is a reward in itself. "Hardships equal Character." May you as well have many many blessings along your journey. We all have faced "Adversity" in our lifetimes, it is how we handle the process. Know I care deeply for each person that comes across my path here.... More…

MS Condition

MSRS : 100 latest: 11/05/09