PatientsLikeMe ™

I have been Joy's nurse since September 12, 2008. I had never known anything about her disease until she became my patient. Everyday is a learning experience with her and my understanding has grown where her disease process is concerned. I found this site because she and I wanted to reach out to other patients who fight this battle too. We want to apologize for being slow to set everything up. Joy is not able to communicate with me verbally well, so it takes us a while to come up with what she wants said. It is very important that the words on this blog are her's and not mine.