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sstafne

sstafne

Male, 36 years
Minneapolis, MN

sstafne: Data Quality: 2 stars; ALS: 5 yrs; Wheelchair; Mouth/throat: none; Arms: moderate; Chest: mild; Legs: moderate; See profile

Member since: 11/05
Last updated: 11/05/08

Diagnosis Summary
Onset: Arms
First symptom: 11/03
Diagnosis: 09/04

Forum Activity
6 posts 31 helpful marks

About Me
Young father with hope to stay alive for my daughters as long as possible. Have found it therapeutic to write my thoughts, in blog form, at www.stafnes.com/blog. Want to raise awareness and money for ALS research. Turn Ons: Movies, beer, heavy metal. Turn Offs: attitude, lazyness, ALS

732 Views

ALS Public Registry

My CareTeam

ALS Condition

FRS: 24 (latest: 11/05/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 66% (latest: 10/16/08)

Warning Levels: warning; severe

Weight: 176 lb (latest: 10/16/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: treat my ALS; general health; specific symptom; other

Over The Counter Drug

Supplement

Physical Therapy

Equipment

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe