- Sex: M
- Data Quality: 2 stars
- ALS: 4 yrs
- Bi-Pap Wheelchair Feeding tube
- Bulbar: mild
- Arms: severe
- Chest: moderate
- Legs: severe
- Male, 41 years
- Mascouche, QC
- Primary Condition
- First symptom
- Apr 19, 2012
I have had a good run in life, and it seems the scales are balancing a bit. Fairly happy, with a marvelous family, a daughter of 27 months, and I am now trying to figure out this disease and how to deal efficiently with it. I find that remaining happy is surprisingly easier than I expected. Maybe a dopamine excess in the brain or something :) Still in the early stages, still able to walk at this time, so we will see what I say a year from now. Good luck to everyone. -Louis
I have a wonderful girlfriend, soon to be wife despite the tougher times ahead, resolute and balanced, who gets into this with her eyes open. Our beautiful daughter of 18 months, who is a true treasure. I intend to stick around long enough to roll over the feet of those boys I don't approve of, when she is of an age to bring boys back home. Grrr!
A programmer-analyst by training, I started a software edition company eight years ago with a friend of mine. We are now ten who work there, and now that the company at last has what it takes to weather most of everything thrown at it... I hit this darned ALS thingie :P What I created will survive, at least.
I love to travel. It seems my instinct of doing the hard trips first was the right one, so Europe seems to be next on the list of places to visit.
Two goals: be as autonomous as possible, and be happy. Not just me, but the entire family. That will be harder than normal, but achievable, I believe.
A secondary goal: write. I have been writing for years now, but never in any sustainable fashion for lack of time. Well.. it seems I'll have time to pursue that particular goal, now. That will be enjoyable.
To everyone, the best of luck and morale. And my thanks to all caregivers who read this.
A picture of my girlfriend and our daughter...
- Profile Activity
- 7,914 Views