- notinkansas
- Sex: M
- Data Quality: 0 stars
- ALS: 15 yrs
- Ventilator Wheelchair
- Mouth/throat: severe
- Arms: severe
- Chest: severe
- Legs: severe
- See profile
- notinkansas
- Male, 72 years
- New York, NY
- Status
- 01/09
- 02/05/09
- 05/19/09
- Condition History
- ?
- 04/94
- 06/97
- Non-SOD1 ALS
- Profile Activity
- 16 Views
- About Me
- I was born and raised on a wheat farm near Lindsborg,Kansas, then college at K-State and law at Georgetown. I practiced patent law in NYC for 40 years. Married and have 3 sons,all in NYC. Retired in 2003, totally disabled and have been on a trach, ventilator, feeding tube since Jan, 2004. I have been using an eye-responsive computer for past two years with good success, including e-mail and Internet accessibility. With my eye only, I just published my Memoir, "Not in Kansas Anymore." which includes a detailed chronicle of my ALS experience. Available by email to mepaulson@rcn.com.
Primary Symptoms
- Severity of Symptoms
none- mild
- moderate
- severe
