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notinkansas
Status
01/09
02/05/09
05/19/09
notinkansas
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
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notinkansas
Male, 72 years
New York, NY
Condition History
?
04/94
06/97
Non-SOD1 ALS
Profile Activity
16 Views
About Me
I was born and raised on a wheat farm near Lindsborg,Kansas, then college at K-State and law at Georgetown. I practiced patent law in NYC for 40 years. Married and have 3 sons,all in NYC. Retired in 2003, totally disabled and have been on a trach, ventilator, feeding tube since Jan, 2004. I have been using an eye-responsive computer for past two years with good success, including e-mail and Internet accessibility. With my eye only, I just published my Memoir, "Not in Kansas Anymore." which includes a detailed chronicle of my ALS experience. Available by email to mepaulson@rcn.com.

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