PatientsLikeMe ™

I am the mother of three beautiful children and the part-time caregiver for my mom, who most likely has ALS. I am extremely tenacious and refuse to give up. I do not trust or believe everything said or written about anything. I firmly believe in doing my own research, continuing to educate myself to understand as much as possible and strive to find an answer. I believe that research could progress more rapidly if there was detailed information gathered about the lives of those fighting ALS or other MND. I'm disappointed in the med care in our area, lots of ignorance on managing it.