I was first told on Dec. 28, 1995, that I had ALS. Was not confirmed until 2001. I was a toll collector on the Pa. turnpike. I had to go on disablity retirement as of Aug. 24, 2009 because of the loss of the use of my thumbs. Still walk with a walker, and do for myself. This photo was at my wife’s birthday party last year. It is my wife (Sharon) my grandson (Jake) and me in the front row. Back row is my mother (Catherine) my oldest daughter Julianne (jakes mom) and my youngest daughter Kim. They are my life and they are my helpers too. Only with family can we survive.

I'm winding down some. I'm still able to stand and transfer from my lift chair to my power wheel chair but it is becoming more difficult now. I still eat all foods but I need help cutting some foods. I still try to get out as much as possible. Some days are easier than others. Last night (Tuesday April 23) I went to the Elks Club for wings, and a few beers and was surprised by 2 people I used to work with prior to 1992. It was a good time. I do what I can do to lead a normal life.