PatientsLikeMe : losingmyvoice's ALS Profile

losingmyvoice

Female, 56 years
Auckland, New Zealand

losingmyvoice: Data Quality: 1 star; ALS: 7 yrs; Bi-Pap Wheelchair Feeding tube; Mouth/throat: severe; Arms: moderate; Chest: moderate; Legs: moderate; See profile

Member since: 06/07
Last updated: 05/31/08

Diagnosis Summary
Onset: Bulbar
First symptom: 03/01
Diagnosis: 11/04

Forum Activity
81 posts 103 helpful marks

About Me
I was diagnosed with ALS in late 2004 while living and working in Sydney, Australia. In retrospect my first symptoms (coughing, crying and yawning) started several years earlier. My husband and family were still living in New Zealand and I chose to remain in Sydney and continue working as a clinical research associate. For the next two and a half years I travelled extensively for work and holidays while slowly losing my voice and my ability to eat. My book is not only a "cannot put down" story, but a very poignant milestone in understanding the human tragedy of ALS - see below

More About Me