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Ragingbear
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Status
Member since:
05/06
Last updated:
01/07/09
Last login:
10/28/09
ALS Public Registry
Ragingbear
Sex:
M
Data Quality: 1 star
ALS:
16 yrs
Ventilator
Wheelchair
Mouth/throat: mild
Arms: severe
Chest: severe
Legs: severe
See profile
Ragingbear
Male, 43 years
Lebanon, MO
Condition History
Onset:
Arms
First symptom:
01/93
Diagnosis:
10/93
Profile Activity
321
Views
About Me
I am LIVING with ALS and having a fulfilling, incredibly great life!!! Click on "Read More" to read my complete story. Your friend in the fight, Jeff Lester (ragingbear) Married w/ 3 daughters (all born AFTER diagnosis) Dx'd 10/93 and on vent since 12/97 You too can have a fulfilling life by learning to LIVE with ALS!!!
http://www.ragingbearscloset.com/
http://ragingbearslivingwithals.blogspot.com/
http://ragingbearsrant.blogspot.com/
More…
ALS Condition
FRS : 7
latest: 05/06/06
Progression rate percentile
90-95th (slow)
75-90th
25-75th (average)
10-25th
5-10th (rapid)
FVC : 13%
latest: 05/06/06
Warning Levels
warning
severe
Weight : 198 lb
latest: 01/07/09
BMI
obese
overweight
healthy
underweight
Treatments
Supplement
Reasons Taken
treat my ALS
general health
specific symptom
other
Procedures
Symptoms
Primary Symptoms
Severity of Symptoms
none
mild
moderate
severe
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