G'day, I am Roly Griffiths, aka kiwicalsnz. 74 yrs old, twice married, twice widowed by MND/ALS.
4 children 3 surviving, 7 grand kids.
Married at 20, had several carreers, with reasonable performance, culminating with my final carreer as a Cals, commencing in 1989 when my first wife was dx with MND.
In this I was/ am brilliant, so much so that after the loss of my first wife in March 1995 I remarried in 1997 to a lass who at that time had lived 15 years with MND. I lost her in Feb. 2006, we had a wonderful 9 years together.
I am Roly Griffiths. CALS to two wives, separately,1989 to 11 Feb 2006. With a break of 3 years between wives which I spent as a volunteer Hospice Caregiver, spending many nights in the homes of terminally ill patients.
My first wife, Alison, died in March 1995, just 1 week short of our 41st wedding anniversary. We were very fortunate to have one of the early MND Support Groups within driving distance and soon became involved in the administration of the group. After Alison's death I continued with the group. In November 1997 I married Jill Braddick (QSM) who, at that time had lived for 16 years with MND. Jill was the prime mover in the formation of the MNDANZ. Although by then she was considerably disabled her enthusiasm for the cause never waned. Via the Internet, courtesy of EZKeys, she spread her enthusiasm round the world. In 2003 Jill was awarded the Queens Service Medal, in recognition of the work she had done for MND and for disabillities in general.
To complement that, in 2004 I was awarded the ALS March of Faces Caregiver of the Year award.
As a parting gift, Jill donated her brain to Neurological research at Auckland Medical School, where some advanced work is being done. I have since been advised that Jill did have ALS, which surprised me as I had thought that her symptoms more closely indicated PLS.
Since her death I have been trying to live a normal life, not very successfully, I fear. However, I have been persuaded to take a break so, later in August, I will tow my caravan to the far South of our country, where I have bought a seaside cottage,, spending a lot of time seeing the sights and, hopefully, visiting MND people along the way. Few & far between, in New Zealand..
Apr 28, 2006
Sep 17, 2008
Profile charts require Flash.
If you have problems installing Flash,
visit the FAQ