- spotsdad
- Sex: M
- Data Quality: 3 stars
- ALS: 1 yr
- Bi-Pap
- Mouth/throat: none
- Arms: moderate
- Chest: mild
- Legs: moderate
- See profile
- spotsdad
- Male, 54 years
- Paoli, PA
- Status
- 12/08
- 11/16/09
- 11/20/09
-
ALS Public Registry
- Condition History
- Legs
- 08/08
- 02/09
- Non-SOD1 ALS
- Profile Activity
- 169 Views
- About Me
- I was diagnosed with ALS on Feb 23, 2009. My legs have dramatically atrophied in the past twelve months after years of running and playing basketball. I have fasciculations all day and night. My walking is limited to using a walker to get to the recliner, shower, bed or powerchair. I have a caring wife and two college age children. Everyone is kept up on my situation. My wife and I talk both calmly and with equal parts of gallows humor about how we'll handle the future. My mother died from bulbar ALS and she lived for 2 yrs. I was always thankful to have that time to say goodbye to my mom.
Primary Symptoms
- Severity of Symptoms
none- mild
- moderate
- severe
Secondary Symptoms
