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Patients > jstsb58/fla
jstsb58/fla
Status
11/08
11/01/09
11/14/09
ALS Ribbon ALS Public Registry
jstsb58/fla
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Mouth/throat: moderate
Arms: moderate
Chest: moderate
Legs: moderate
jstsb58/fla
Male, 51 years
Satellite Beach, FL
Condition History
Bulbar
04/08
09/08
Profile Activity
46 Views
About Me
I am 51, married 24 years with 23 year old daughter and 17 year old son. My diagnoses with ALS was September 18th, 2008. First onset in my speech around March/April and shortly after my left leg and left arm. I still continue to degress and I am now a speechless quadriplegic. Though I still try to stay mentally positive with regard to everything in my life, it is getting harder to cope each day. If there are other PALS or CALS who can offer me suggestions please email me at jstysenn@aol.com.
FRS : 15 latest: 05/26/09
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FVC : 32% latest: 10/27/09
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Weight : 181 lb latest: 10/19/09
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