Select a community
Fibromyalgia And Chronic Fatigue Syndrome
Find out more about the PatientsLikeMe
Fibromyalgia And Chronic Fatigue Syndrome Community
Patients > Henk
Henk
Status
09/08
11/10/09
11/17/09
ALS Ribbon ALS Public Registry
Henk
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Feeding tube
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: none
Henk
Male, 54 years
Losser, The Netherlands
Condition History
Bulbar
11/06
06/08
Non-SOD1 ALS
Profile Activity
137 Views
About Me
Hi, I am Henk from The Netherlands, lived there all my life. I am married to Jans, we have one daughter(born 1986) and two sons(1987 and 1992). They are giving me all the support I need. I have worked untill May 2008 as a foodtechnologist, develloping foodproducts. I used to run a lot, about 40 to 60 km per week, sometimes a half marathon. We used to go camping in warmer parts of Europe, so that will be my target for the summer of 2009 again.
FRS : 28 latest: 11/03/09
Progression rate percentile
Spacer 90-95th (slow)
Spacer 75-90th
Spacer 25-75th (average)
Spacer 10-25th
Spacer 5-10th (rapid)
FRSChart
FVC : 101% latest: 11/03/09
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight : 198 lb latest: 11/03/09
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms