PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
cookielady

cookielady

Female, 81 years
Lodi, CA
cookielady
Data Quality: 3 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Mouth/throat: moderate
Arms: moderate
Chest: moderate
Legs: moderate
See profile
08/08
: 10/09/08

Diagnosis Summary
Arms
05/04
11/07

 About Me
I exercised all my life: gardening, walking, jogging. A highlight for me was when I ran in a President's Day race in Hawaii when I was 65. I was a stenographer, crocheter and piano player. I used my hands and fingers without a thought....so ALS is a bit of an adjustment for me. I thought I would have my piano playing as a comfort in my old age. Seems like God had a different plan. So I listen to beautiful music on CDs now. It helps calm and soothe me. My husband is 84 and starting to fail. We laugh about life together.
More About Me
Number of times this Profile has been viewed 63 Views ALS Public Registry ALS Public Registry  
Caregiver Starfish
FRS: 14 (latest: 09/10/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 62% (latest: 09/05/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 142 lb (latest: 09/05/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Lifestyle modification
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Back to top