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actualized

actualized

Male, 59 years
Surry, ME

actualized: Data Quality: 3 stars; ALS: 2 yrs; Ventilator Wheelchair; Mouth/throat: severe; Arms: severe; Chest: severe; Legs: severe; See profile

Member since: 05/07
Last updated: 02/15/08

Diagnosis Summary
Onset: Bulbar
First symptom: 11/05
Diagnosis: 11/06
Deceased: 02/13/08

Forum Activity
224 posts 296 helpful marks

About Me
I am living on the ocean, in the woods in Maine with best friend (wife) of 35 years. We live with our two dogs and a cat. We have 2 sons and a daughter-in-love. My background is education and psychotherapy. We moved from Michigan 11 years ago. My philosophy is to live each day to fullest with gratitude and a positive mental attitude. I went to Central America in April 07 for stem cell therapy. So far it has had a huge impact on arresting my illness. I have more energy, less fatigue, and more strength. I have a greater sense of optimism since the therapy. www.stemcellman.com

More About Me

1094 Views

ALS Public Registry

My CareTeam

ALS Condition

FRS: 0 (latest: 02/15/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 52% (latest: 01/16/08)

Warning Levels: warning; severe

Weight: 165 lb (latest: 01/16/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: slow my ALS progress; general health; specific symptom; other

Over The Counter Drug

Supplement

Physical Therapy

Equipment

Procedures

Lifestyle modification

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms